SHOP NOW: Paper Clouds Apparel will donate 50% of profits from the “Love is Blind” Braille collection to the BDSRA Foundation. This collection features the word “Love” Brailled by Daxx, who has CLN3 Batten disease. 

Joining us in Chicago for the Conference July 10-12? We need volunteer help for our various conference committees! No prior experience is needed. Click the button below for more details, and email heather@bdsrafoundation.org if you’re interested.

REMINDER: You can order Panda Express online on FRIDAY, FEBRUARY 27, to support the BDSRA Foundation and families affected by Batten disease before Rare Disease Day. PLEASE SHARE to spread the word! Let’s surpass last year’s proceeds of over $2,300 on the 27th!