Australia
BDSRA Australia was formed in 1995 by parents of children affected by Batten disease.
Location: 9 Norton Avenue, Killarney Vale, 2261 NSW, Australia
Telephone: 0475428691
Email: info@bdsraaustralia.org
Website: www.battens.org.au
Facebook: www.facebook.com/bdsraaustralia
Canada
States/regions served: Serving all 10 provinces in Canada
President: Lori Brown – canadabdsra@gmail.com
Website: www.battendisease.ca
United Kingdom
Batten Disease Family Association (BDFA)
Support: 0800 046 9832
General: 07354 486 586
Fundraising: 07745 210212
Email: admin@bdfa-uk.org.uk
Website: bdfa-uk.org.uk
Facebook: https://www.facebook.com/bdfauk
