Get your “Love Hope Cure” Apparel for International Batten Disease Awareness Day
“Love Hope Cure” T-shirts and sweatshirts to celebrate International [...]
Conference Hotel Room Block is Open!
Book your hotel room(s) and join us in Chicago [...]
MARCH 2026 NEWSLETTER | The Illuminator From BDSRA
March 2026 [...]
BDSRA Foundation Announces Children’s National Hospital as 12th Site in Batten Disease Clinical Centers of Excellence Program
GAHANNA, OH (March 24, 2026) – The BDSRA Foundation continues [...]
Batten Disease & BDSRA Fundraising Update
🚨 FINAL CALL 🚨 Support the Batten disease community [...]
Happy St. Patrick’s Day, Batten Disease Community!
HAPPY ST. PATRICK’S DAY! 🌈🍀🌈🍀 TODAY’S THE DAY for [...]
NEW BATTEN DISEASE FUNDRAISER ALERT…🍀👀
This St. Patrick’s Day, we invite you to participate [...]
FEBRUARY 2026 NEWSLETTER | The Illuminator From BDSRA
February 2026 [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | February 2026
It's time for Batten disease research updates! BDSRA Foundation's [...]
GET INVOLVED: Rare Disease Week 2026
Want to get involved? Visit our website to see [...]
