Batten Disease: Rare Disease Week 2026
Click below to learn more about what you can [...]
Latest Batten Disease and BDSRA Fundraiser & Conference News
Shop to benefit BDSRA and the Batten Community! SHOP [...]
JANUARY 2026 NEWSLETTER | The Illuminator From BDSRA
January 2026 [...]
BDSRA Foundation Announces Boys Town National Research Hospital as New Site in Clinical Centers of Excellence Program; Two Sites Earn CoE Promotions
GAHANNA, OH (January 29, 2026) – The Batten Disease [...]
FINAL CALL: 2026 Conference Theme Ideas
It's the final call for theme ideas for the [...]
Important Announcement: Building a Stronger Future for BDSRA
January 14, 2026 Dear Community, For 39 years, BDSRA has [...]
BDSRA 2026 Annual Family Conference | Ideas from Batten Disease Community
Here’s a look back at some of the Annual [...]
BDSRA Foundation Welcomes Four New Board Members
The BDSRA Foundation is proud to welcome four new [...]
How BDSRA Supports Bereaved and Actively Caring Batten Disease Families
The BDSRA Annual Family Conference is a haven [...]
Batten Disease | BDSRA Foundation Bids Two Board Members Farewell
Darlene Royalty “Darlene has been a valuable source [...]
