Patrick Kotnik, Author at Batten Disease Support & Research Association

Why fundraise for BDSRA and Batten disease?

“If every single person on the planet knew [...]

By Patrick Kotnik|2025-12-13T16:34:28-05:00December 26th, 2025|Latest News|Comments Off

Thanks to YOUR generosity, major initiatives like the [...]

By Patrick Kotnik|2025-12-13T15:59:48-05:00December 19th, 2025|Latest News|Comments Off

Holiday Season 2025 [...]

By Patrick Kotnik|2025-12-10T09:26:34-05:00December 10th, 2025|Latest News|Comments Off

It’s time for Batten disease research updates! BDSRA Foundation’s [...]

By Patrick Kotnik|2025-12-09T17:26:31-05:00December 9th, 2025|Clinical News, Latest News, Research News|Comments Off

More positive news for our CLN2 community this week, [...]

By Patrick Kotnik|2025-12-04T09:26:15-05:00December 4th, 2025|Clinical News, Latest News, Research News|Comments Off

Latus Bio announced today clearance by the U.S. Food [...]

By Patrick Kotnik|2025-12-02T11:43:26-05:00December 2nd, 2025|Clinical News, Latest News, Research News|Comments Off

Giving Tuesday is NEXT WEEK! We know this year [...]

By Patrick Kotnik|2025-11-26T13:57:28-05:00November 26th, 2025|Latest News|Comments Off

PRESS RELEASE: [...]

By Patrick Kotnik|2025-11-18T14:02:07-05:00November 18th, 2025|Clinical News, Latest News, Research News|Comments Off

The next Ask-An-Expert session, which was scheduled for Tuesday, [...]

By Patrick Kotnik|2025-11-17T12:15:24-05:00November 17th, 2025|Clinical News, Latest News, Research News|Comments Off

October 2025 [...]

By Patrick Kotnik|2025-11-04T10:19:44-05:00November 4th, 2025|Latest News|Comments Off