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What Is Batten Disease?
What Is Batten Disease
Types of Batten Disease
Symptoms and Diagnosis
Ways to Give
Fam Funds
Interest Form
Giving Guide
2024 Annual Appeal
Donor Advised Fund Giving Form
Support
Centers of Excellence
Annual Family Conference
2025 BDSRA Annual Family Conference
Caregiver Resources
Newly Diagnosed?
Family Grants
Family and Caregiver Support
Parenting and Finding Emotional Support
Parents and Family Members as Caregivers
Bereaved Parents and Caregivers
Nuts and Bolts of Care
Educational Resources
Support for Batten Siblings
Join the BDSRA Community
Resource Corner
Research
Global Research Initiative
Researcher Email List
Centers of Excellence
Clinical Trials & Natural History Studies Chart
Family Register
Research and Clinical News
Research and Treatments
Current RFPs
Research Awards 2019
Advocacy
Advocacy Toolkit
Rare Disease Week
State and Local Initiatives
Hometown Efforts
News
Illuminator Newsletter
Press and Media
Social Media
Events
Memorials
About
History and Mission
Our Staff
Our Board of Directors
Investors
Financials and Reporting
International Partners
Contact
Search for:
What Is Batten Disease?
What Is Batten Disease
Types of Batten Disease
Symptoms and Diagnosis
Ways to Give
Fam Funds
Interest Form
Giving Guide
2024 Annual Appeal
Donor Advised Fund Giving Form
Support
Centers of Excellence
Annual Family Conference
2025 BDSRA Annual Family Conference
Caregiver Resources
Newly Diagnosed?
Family Grants
Family and Caregiver Support
Parenting and Finding Emotional Support
Parents and Family Members as Caregivers
Bereaved Parents and Caregivers
Nuts and Bolts of Care
Educational Resources
Support for Batten Siblings
Join the BDSRA Community
Resource Corner
Research
Global Research Initiative
Researcher Email List
Centers of Excellence
Clinical Trials & Natural History Studies Chart
Family Register
Research and Clinical News
Research and Treatments
Current RFPs
Research Awards 2019
Advocacy
Advocacy Toolkit
Rare Disease Week
State and Local Initiatives
Hometown Efforts
News
Illuminator Newsletter
Press and Media
Social Media
Events
Memorials
About
History and Mission
Our Staff
Our Board of Directors
Investors
Financials and Reporting
International Partners
Contact
Batten Disease Caregiver Resources
Home
Batten Disease Caregiver Resources
Batten Disease Caregiver Resources
Patrick Kotnik
2025-02-12T15:44:23-05:00
Web Links
Family Caregiver Alliance (FCA)
Taking Care of YOU: Self-Care for Family Caregivers
Fact Sheet: Depression and Caregiving
Fact Sheet: Advocacy Tips for Family Caregivers
Caregiving 101
National Alliance for Caregiving
Care for the Family Caregiver: A Place to Start
Caregiver Action Network
10 Tips for Family Caregivers
Rosalynn Carter Institute for Caregivers
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