BIG BATTEN DISEASE FUNDRAISING NEWS…and a new event!

28% of Panda Express Online Sales go to BDSRA on Feb. 28!

Thanks to the Palermo family, a NATIONWIDE fundraiser will be held for the BDSRA Foundation through Panda Express on Rare Disease Day on Friday, February 28. This applies to ONLINE ORDERS ONLY at locations nationwide.

Apply code 9001947 in the fundraiser code box during online checkout at pandaexpress.com or the Panda Express app on Friday, February 28 and 28% of sales will be donated to BDSRA.

Click the button below for more details and share this news with your family, friends, and local community!

More Information

UPCOMING EVENTS

Hosted by Batten parent Heather Dainiak, these Coffee Chats are a safe space for parents and caregivers of all CLN types — no pressure, no obligation — just understanding, connection, and a chance to breathe.

When you register, select one of the two upcoming sessions (TODAY – Tuesday, Feb. 18 at 7 PM EST or Friday, Feb. 21 at 11 AM EST).

There will be a SIBs Mid-Season Social on Saturday, March 1, 2025, that is open to BATTEN SIBLINGS ONLY. Batten siblings of all ages are welcome, including those who haven’t participated in the SIBs program before. This event is an opportunity for SIBs to reconnect with fellow Batten SIBs and for those new to the program to introduce themselves. A Zoom link to join the event will be available in your confirmation email after you register.