We need your expertise and input in planning for the future of the BDSRA!
The BDSRA Board of Directors is actively working on [...]
SPRING 2026 NEWSLETTER | The Illuminator From BDSRA
Spring 2026 [...]
Batten Disease Global Research Initiative Announces 2026 Research Grant Recipients
FOR IMMEDIATE RELEASE May 15, 2026 [...]
2026 BDSRA CONFERENCE REGISTRATION IS OPEN | Batten Disease
Join us in Chicago this July for the [...]
Get your “Love Hope Cure” Apparel for International Batten Disease Awareness Day
“Love Hope Cure” T-shirts and sweatshirts to celebrate International [...]
Conference Hotel Room Block is Open!
Book your hotel room(s) and join us in Chicago [...]
MARCH 2026 NEWSLETTER | The Illuminator From BDSRA
March 2026 [...]
BDSRA Foundation Announces Children’s National Hospital as 12th Site in Batten Disease Clinical Centers of Excellence Program
GAHANNA, OH (March 24, 2026) – The BDSRA Foundation continues [...]
Batten Disease & BDSRA Fundraising Update
? FINAL CALL ? Support the Batten disease community [...]
Happy St. Patrick’s Day, Batten Disease Community!
HAPPY ST. PATRICK’S DAY! ???? TODAY’S THE DAY for [...]
