BDSRA Applauds Latest News From ForeBatten Foundation on Zebronkysen
We applaud the news from our friends at ForeBatten Foundation [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | August 2024 Illuminator Edition
It's time for research updates! BDSRA Foundation's Head of [...]
Tern Therapeutics Enters into a Global Licensing Agreement with REGENXBIO Inc. for RGX-381 and RGX-181
Tern Therapeutics has announced its launch and entered into [...]
Global Update – CLN5 Batten Disease Clinical Trial
August 12, 2024 – On Friday, August 9, Neurogene Inc. [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | July 2024 Illuminator Edition
It's time for research updates! BDSRA Foundation's Head of Research [...]
FDA Approves BioMarin’s BRINEURA® for Children Under 3 Years with CLN2 Batten Disease
Read the following press release and information below courtesy of [...]
BREAKING: BDSRA Foundation Unveils CoE & Affiliates; Batten Disease Global Research Initiative
ST. LOUIS (July 15, 2024) – The BDSRA Foundation [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | June Illuminator Edition
It's time for research updates! BDSRA Foundation's Head of Research [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | May Illuminator Edition
It's time for research updates! BDSRA Foundation's Head of Research [...]
FINAL SURVEY CALL: Batten Disease Research Needs
Please share your opinion on Batten disease research needs [...]
