Research News

BDSRA Foundation Announces Boys Town National Research Hospital as New Site in Clinical Centers of Excellence Program; Two Sites Earn CoE Promotions

GAHANNA, OH (January 29, 2026) – The Batten Disease [...]

By Patrick Kotnik|2026-01-29T11:32:17-05:00January 29th, 2026|Clinical News, Latest News, Research News, Resource Corner|Comments Off

It’s time for Batten disease research updates! BDSRA Foundation’s [...]

By Patrick Kotnik|2025-12-09T17:26:31-05:00December 9th, 2025|Clinical News, Latest News, Research News|Comments Off

More positive news for our CLN2 community this week, [...]

By Patrick Kotnik|2025-12-04T09:26:15-05:00December 4th, 2025|Clinical News, Latest News, Research News|Comments Off

Latus Bio announced today clearance by the U.S. Food [...]

By Patrick Kotnik|2025-12-02T11:43:26-05:00December 2nd, 2025|Clinical News, Latest News, Research News|Comments Off

PRESS RELEASE: [...]

By Patrick Kotnik|2025-11-18T14:02:07-05:00November 18th, 2025|Clinical News, Latest News, Research News|Comments Off

The next Ask-An-Expert session, which was scheduled for Tuesday, [...]

By Patrick Kotnik|2025-11-17T12:15:24-05:00November 17th, 2025|Clinical News, Latest News, Research News|Comments Off

In 2024, recognizing the urgent need to establish research [...]

By Patrick Kotnik|2025-10-03T13:38:44-04:00October 3rd, 2025|Clinical News, Latest News, Research News|Comments Off

GAHANNA, OH (September 22, 2025) – The BDSRA Foundation [...]

By Patrick Kotnik|2025-09-22T13:02:44-04:00September 22nd, 2025|Clinical News, Latest News, Research News|Comments Off

Expressions of Interest are now open for the 2025-26 [...]

By Patrick Kotnik|2025-09-03T14:38:42-04:00August 20th, 2025|Latest News, Research News|Comments Off

It's time for Batten disease research updates! BDSRA Foundation's [...]

By Patrick Kotnik|2025-08-18T09:09:25-04:00August 15th, 2025|Clinical News, Latest News, Research News|Comments Off