Research News

Batten Disease Advocates Applaud B.C. Government’s Reversal on Brineura Funding

July 18, 2025—Batten Disease Support, Research, and Advocacy (BDSRA) Canada, [...]

By Patrick Kotnik|2025-07-18T16:41:03-04:00July 18th, 2025|Advocacy, Clinical News, Latest News, Research News|Comments Off

It's time for Batten disease research updates! BDSRA Foundation's [...]

By Patrick Kotnik|2025-05-01T18:37:50-04:00May 1st, 2025|Clinical News, Latest News, Research News|Comments Off

It's time for Batten disease research updates! BDSRA Foundation's [...]

By Patrick Kotnik|2025-04-14T11:19:59-04:00April 14th, 2025|Clinical News, Latest News, Research News|Comments Off

We are proud to announce the recipients of the [...]

By Patrick Kotnik|2025-03-18T11:40:58-04:00March 18th, 2025|Clinical News, Latest News, Research News|Comments Off

Included in this email update: Batten Disease Global Research [...]

By Patrick Kotnik|2025-03-10T14:05:58-04:00March 11th, 2025|Advocacy, Latest News, Research News|Comments Off

The following letter from Tern Therapeutics shares the latest on [...]

By Patrick Kotnik|2025-02-27T11:17:37-05:00February 27th, 2025|Clinical News, Latest News, Research News|Comments Off

It's time for the first Batten disease research updates [...]

By Patrick Kotnik|2025-01-30T11:29:34-05:00January 30th, 2025|Clinical News, Latest News, Research News|Comments Off

CLICK HERE TO DONATE TO BDSRA We can’t discover [...]

By Patrick Kotnik|2024-12-19T17:17:57-05:00December 27th, 2024|Advocacy, Latest News, Research News|Comments Off

It's time for research updates! BDSRA Foundation's Head of [...]

By Patrick Kotnik|2024-12-09T13:37:09-05:00December 9th, 2024|Clinical News, Latest News, Research News|Comments Off

It's time for research updates! BDSRA Foundation's Head of [...]

By Patrick Kotnik|2024-10-31T16:51:56-04:00October 31st, 2024|Clinical News, Latest News, Research News|Comments Off