Batten Disease Global Research Initiative Announces 2026 Research Grant Recipients
FOR IMMEDIATE RELEASE May 15, 2026 [...]
BDSRA Foundation Announces Children’s National Hospital as 12th Site in Batten Disease Clinical Centers of Excellence Program
GAHANNA, OH (March 24, 2026) – The BDSRA Foundation continues [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | February 2026
It's time for Batten disease research updates! BDSRA Foundation's [...]
BDSRA Foundation Announces Boys Town National Research Hospital as New Site in Clinical Centers of Excellence Program; Two Sites Earn CoE Promotions
GAHANNA, OH (January 29, 2026) – The Batten Disease [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | Sept-Nov 2025
It’s time for Batten disease research updates! BDSRA Foundation’s [...]
CLN2 Batten Disease Update from Tern Therapeutics
More positive news for our CLN2 community this week, [...]
CLN2 Batten Disease Update from Latus Bio
Latus Bio announced today clearance by the U.S. Food [...]
NOVEMBER ASK-AN-EXPERT EVENT POSTPONED; WILL BE RESCHEDULED
The next Ask-An-Expert session, which was scheduled for Tuesday, [...]
PUBLICATION ALERT: Batten Disease Research Goals Published in The Lancet Neurology
In 2024, recognizing the urgent need to establish research [...]
