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X-WR-CALDESC:Events for Batten Disease Support & Research Association
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DTSTART;VALUE=DATE:20220222
DTEND;VALUE=DATE:20220303
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CREATED:20220118T203732Z
LAST-MODIFIED:20220118T203732Z
UID:13654-1645488000-1646265599@bdsrafoundation.org
SUMMARY:Rare Disease Week on Capitol Hill
DESCRIPTION:Rare Disease Week on Capitol Hill brings together rare disease community members from across the country to be educated on federal legislative issues\, meet other advocates\, and share their unique stories with legislators. \n\nRare Disease Week
URL:https://bdsrafoundation.org/event/bdsra-rare-disease-week-on-capitol-hill/
CATEGORIES:Advocacy Event
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DTSTART;TZID=America/New_York:20220302T190000
DTEND;TZID=America/New_York:20220302T200000
DTSTAMP:20260617T090604
CREATED:20220224T173526Z
LAST-MODIFIED:20220224T173622Z
UID:13724-1646247600-1646251200@bdsrafoundation.org
SUMMARY:Rare Disease Week Debrief Party
DESCRIPTION:After a week of advocating for our Batten Community\, join BDSRA for a live debrief with staff and others who participated during this week of advocacy. We cannot wait to hear all your stories and victories! \nTo Register Visit: https://web.charityengine.net/RDWParty
URL:https://bdsrafoundation.org/event/rare-disease-week-debrief-party/
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