BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Batten Disease Support & Research Association - ECPv6.15.12.2//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://bdsrafoundation.org
X-WR-CALDESC:Events for Batten Disease Support & Research Association
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20210101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20220918T190000
DTEND;TZID=UTC:20220918T200000
DTSTAMP:20260522T064658
CREATED:20220909T185318Z
LAST-MODIFIED:20220912T154101Z
UID:15545-1663527600-1663531200@bdsrafoundation.org
SUMMARY:Advocacy Committee Meeting
DESCRIPTION:Our Advocacy Committee invites you to discuss local and federal advocacy efforts\, Newborn Screening\, Rare Disease Week\, how to share your story\, and more! \nVirtual meetings will be held on the third Sunday of each odd month at 7 p.m. ET. The first meeting will be held on Sunday\, September 18th! \nPlease email info@bdsrafoundation.org to get started!
URL:https://bdsrafoundation.org/event/advocacy-committee-meeting/
CATEGORIES:Advocacy Event
END:VEVENT
END:VCALENDAR