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X-ORIGINAL-URL:https://bdsrafoundation.org
X-WR-CALDESC:Events for Batten Disease Support & Research Association
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DTSTART;TZID=America/New_York:20240118T150000
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DTSTAMP:20260425T090848
CREATED:20240104T172002Z
LAST-MODIFIED:20240118T151902Z
UID:18326-1705590000-1705593600@bdsrafoundation.org
SUMMARY:CLN7 Batten Disease Research Update
DESCRIPTION:Elpida Therapeutics will host an open virtual meeting via Zoom on Thursday\, January 18\, from 3-4 p.m. EST\, to provide an update on the ongoing gene therapy trial for treating CLN7 Batten disease\, which has been led by the University of Texas Southwestern Medical Center. \nThey will discuss their plans to expand the treatment to more patients in the future\, and how our patient community can help move this program forward. Please note that this meeting is primarily for families affected by CLN7 disease but is open to all Batten families\, researchers\, clinicians\, patient advocacy groups\, etc. who wish to attend. \nJoin the Zoom meeting by clicking the link below. \nLink: https://us02web.zoom.us/j/9890666291?omn=87196549060 \nMeeting ID: 989 066 6291
URL:https://bdsrafoundation.org/event/cln7-batten-disease-research-update/
LOCATION:Zoom
CATEGORIES:Research
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