BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Batten Disease Support &amp; Research Association - ECPv6.15.12.2//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Batten Disease Support &amp; Research Association
X-ORIGINAL-URL:https://bdsrafoundation.org
X-WR-CALDESC:Events for Batten Disease Support &amp; Research Association
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240409T170000
DTEND;TZID=America/New_York:20240409T180000
DTSTAMP:20260424T213454
CREATED:20240402T141215Z
LAST-MODIFIED:20240409T171905Z
UID:18547-1712682000-1712685600@bdsrafoundation.org
SUMMARY:Ask-An-Expert Webinar: Research in Review
DESCRIPTION:Ask-An-Expert returns on Tuesday\, April 9 from 5:00-6:00 p.m. EDT for a Research in Review edition. Hosted by BDSRA Foundation Head of Research & Medical Affairs\, Dr. Ineka Whiteman\, this webinar will feature presentations from: \n\nPaulo Falabella\, MD\, PhD\, Vice President\, Clinical Development & Operations\, REGENXBIO: Preliminary Clinical Data on CLN2 Gene Therapy RGX-181 & RGX-381 \nEwa Ziółkowska\, PhD\, Post Doctoral Researcher\, Pediatric Storage Disorders Lab\, Washington University in St. Louis: Gene Therapy Treats Neuromuscular Consequences in a CLN3 Mouse Model\nIneka Whiteman\, PhD\, Head of Research & Medical Affairs\, BDSRA U.S. & Australia: Clinical Research Updates\n\nIMPORTANT NOTE: Although webinars are typically recorded and posted to our YouTube channel afterward\, today’s webinar WILL NOT be recorded. So if you’re able to\, please register to attend the webinar. \nLearn more and register by clicking here.
URL:https://bdsrafoundation.org/event/ask-an-expert-webinar-research-in-review/
CATEGORIES:Ask-An-Expert
END:VEVENT
END:VCALENDAR