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X-WR-CALNAME:Batten Disease Support &amp; Research Association
X-ORIGINAL-URL:https://bdsrafoundation.org
X-WR-CALDESC:Events for Batten Disease Support &amp; Research Association
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DTSTART;TZID=America/New_York:20260416T120000
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UID:20758-1776340800-1776344400@bdsrafoundation.org
SUMMARY:Monthly Coffee Chat
DESCRIPTION:Hosted by Batten parent Heather Dainiak\, these chats are a safe space for parents and caregivers of all CLN types in the United States\, Canada\, and abroad—no pressure\, no obligation—just understanding\, connection\, and a chance to breathe.  \nSession Details for April 16: When sleep is hard\, everything can feel heavier. This Coffee Chat is a space to connect with fellow Batten parents\, share what your nights have been like\, and talk openly about the challenges of rest while caring for your child. Come as you are and know you are not alone. \nNOTE: You only have to complete the registration form once\, and you will receive the Zoom link for all future Coffee Chats. The Zoom link will remain the same for all chats. You will also receive email reminders for each upcoming Coffee Chat.  \nClick here to register.
URL:https://bdsrafoundation.org/event/coffee-chat/
LOCATION:Zoom
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