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X-WR-CALDESC:Events for Batten Disease Support & Research Association
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DTSTART;TZID=America/New_York:20220609T080000
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CREATED:20220330T155631Z
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UID:13789-1654761600-1654804800@bdsrafoundation.org
SUMMARY:International Batten Awareness Day 2022
DESCRIPTION:Click Here to Register! \n  \nJune 9th is International Batten Disease Awareness Day!   \nOur goal is to honor and support those affected by Batten disease and to raise awareness. \n  \nAbout this event \nJoin us as we celebrate families around the world and raise awareness!  BDSRA is hosting the 2022 International Batten Disease Awareness Day Virtual 5K on June 9th\, 2022. \n  \nWhat exactly IS a Virtual 5K? \nIt is just like any other 5K\, except there is no official race location. The virtual part of this means no traveling and no early start times! It also means you get to choose where\, with whom\, and even how you want to complete the 5K.  This 5K can be done at any time leading up to June 9th. It can even be done in increments\, keep track of your distance until you hit the 5K. \n  \nHow to participate to raise funds and awareness \nThis event is open to individuals of all ages and abilities. Once you register\, either as an individual or as part of a team\, you are set. \n  \nSince this is not a sanctioned event\, there is no penalty if you are unable to complete any or all of the 5K. However\, during International Batten Disease Awareness Day we  will be asking participants to post pictures of themselves on their 5K route. \n  \nThis is completely optional – but since our goal is to bring awareness to Batten disease\, we want to do just that. And by using #battenday2022  and tagging @BDSRA on your social media posts\, we will be able to keep up with the fun. We will highlight posts tagged with @BDSRA in our June Illuminator which will be published June 30\, 2022. \n  \n  \n  \n  \n  \nInternational Batten Awareness Day 2022 – Batten Disease Support & Research Association (bdsra.org)
URL:https://bdsrafoundation.org/event/international-batten-awareness-day-2022/
CATEGORIES:Advocacy Event
ORGANIZER;CN="BDSRA":MAILTO:info@bdsra.org
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