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X-WR-CALDESC:Events for Batten Disease Support & Research Association
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DTSTART;VALUE=DATE:20230609
DTEND;VALUE=DATE:20230612
DTSTAMP:20260416T220614
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UID:16227-1686268800-1686527999@bdsrafoundation.org
SUMMARY:International Batten Disease Awareness Day/Virtual 5K
DESCRIPTION:Our goal is to honor and support those affected by Batten disease and to raise awareness and funds so BDSRA can continue to advocate for all CLN types. \nUPDATE: Donations will be accepted through Sunday\, June 11th. \nAbout this event: Join us as we celebrate families around the world and raise awareness and funds! BDSRA is hosting the 2023 International Batten Disease Awareness Day Virtual 5K on Friday\, June 9th\, 2023. \nSIGN UP ON THE OFFICIAL REGISTRATION PAGE HERE \nWhat exactly IS a Virtual 5K?: It is just like any other 5K\, except there is no official race location. The virtual part of this means no traveling and no early start times! It also means you get to choose where\, with whom\, and even how you want to complete the 5K. This 5K can be done at any time leading up to June 9th. It can even be done in increments\, keep track of your distance until you hit the 5K. \nHow to participate to raise funds and awareness: This event is open to individuals of all ages and abilities. Once you register\, either as an individual or as part of a team\, the focus then shifts to raising funds. Set a personal/team fundraising goal and encourage your family\, friends\, community\, etc. to donate to your fundraisers. BDSRA set a $10\,000 goal this year. The proceeds you raise towards that goal help BDSRA build and maintain staff who’ll provide compassionate support and advocacy for all types of Batten disease. \n \nDuring International Batten Disease Awareness Day we ask participants to post pictures of themselves on their 5K route. Tag BDSRA in your posts and use the hashtag #BattenDay2023. By using #BattenDay2023 and tagging BDSRA on your social media posts\, we will be able to keep up with the fun. \nOrdering T-Shirts: Pictured below are this year’s T-shirts. \n                            Front                                                 Back \n   \nUPDATE: The T-shirt order deadline has passed. \nRacing Bibs: Who are you running for in this virtual 5K? Click the button below to download this year’s racing bib and write who you’re dedicating your virtual walk/run for. Share on social media\, use the hashtag #BattenDay2023\, and tag BDSRA to have your post shared! \nClick here to download your racing bib!
URL:https://bdsrafoundation.org/event/international-batten-disease-awareness-day-virtual-5k-2023/
CATEGORIES:Advocacy Event,Seasonal Events
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