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X-ORIGINAL-URL:https://bdsrafoundation.org
X-WR-CALDESC:Events for Batten Disease Support & Research Association
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250211T183000
DTEND;TZID=America/New_York:20250211T193000
DTSTAMP:20260410T165915
CREATED:20250121T182125Z
LAST-MODIFIED:20250204T163215Z
UID:20679-1739298600-1739302200@bdsrafoundation.org
SUMMARY:Valentine's Day Party
DESCRIPTION:Love is in the air\, and so is fun! The BDSRA Foundation is excited to invite Batten families to a Valentine’s Day party via Zoom on Tuesday\, February 11\, at 6:30 PM EST. It’s a special chance for parents\, siblings\, and their loved one(s) with Batten to come together for a night of joy\, creativity\, and community. \n💐 What’s in store? \n\nA story to enjoy together\nA fun craft activity to spark creativity (don’t worry\, we’ve got the supplies covered!)\n\nParty hits have SOLD OUT. You may still register and join the party if you didn’t reserve a party kit! \nOnce you’ve registered\, we’ll email you the Zoom link to join the fun. So grab your family\, and let’s make this virtual party one to remember! 💌 \nClick here to register.
URL:https://bdsrafoundation.org/event/valentines-day-party-2/
LOCATION:Zoom
CATEGORIES:Holidays,SIBs
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241013T160000
DTEND;TZID=America/New_York:20241013T170000
DTSTAMP:20260410T165915
CREATED:20240823T153909Z
LAST-MODIFIED:20241008T194029Z
UID:20253-1728835200-1728838800@bdsrafoundation.org
SUMMARY:Boo Bash 2024
DESCRIPTION:CLICK HERE TO REGISTER \nWho’s ready for a scary good time? \nGrab your costumes and join us for a frightfully FUN time as BDSRA hosts its Annual Boo Bash for Batten families on Sunday\, October 13\, at 4 PM EDT via Zoom. This virtual party allows parents and SIBs to gather with their loved one(s) with Batten and enjoy a Halloween party with fellow Batten families and the BDSRA staff! \nThe deadline to order party kits has passed\, but you may still register to attend the party and join the fun. \nA Zoom link will be sent to the email address you use to register\, along with instructions to join in the SPOOK-tacular fun. Families are welcome to request a kit for each child participating!
URL:https://bdsrafoundation.org/event/boo-bash-2024/
LOCATION:Zoom
CATEGORIES:Holidays,Seasonal Events,SIBs
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240214T183000
DTEND;TZID=America/New_York:20240214T193000
DTSTAMP:20260410T165915
CREATED:20240124T110005Z
LAST-MODIFIED:20240209T171255Z
UID:18356-1707935400-1707939000@bdsrafoundation.org
SUMMARY:Valentine's Day Party
DESCRIPTION:LOVE IS IN THE AIR! It’s time to mark your calendars for the first BDSRA holiday party of 2024! \nBDSRA will be hosting a virtual Valentine’s Day party on Wednesday\, February 14\, at 6:30 p.m. EST. This is a time for Batten SIBs\, parents\, and affected family members to gather for a fun evening celebrating Valentine’s Day with a party kit that includes a story and craft! \nThe deadline to order party kits has passed\, but you may still attend the party by registering. You will receive the Zoom link to join the party after registering. \nClick here to register!
URL:https://bdsrafoundation.org/event/valentines-day-party/
CATEGORIES:Holidays,SIBs
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231024T180000
DTEND;TZID=America/New_York:20231024T190000
DTSTAMP:20260410T165915
CREATED:20231002T142042Z
LAST-MODIFIED:20231019T130052Z
UID:18110-1698170400-1698174000@bdsrafoundation.org
SUMMARY:2023 Boo Bash
DESCRIPTION:Grab your costumes and join us for a frightfully FUN time at the 2023 Boo Bash taking place on Tuesday\, October 24 at 6 PM EDT via Zoom! \nThe deadline to order party kits has passed. You may purchase the supplies by visiting clicking the links below. \n“How to Catch a Witch” Book \nBoo Bash Craft \nA zoom link will be sent to the email address you use to register\, along with instructions on how to join in the SPOOK-tacular fun. Families are welcome to request a kit for each child who will be participating! \nClick here to register!
URL:https://bdsrafoundation.org/event/2023-boo-bash/
LOCATION:Zoom
CATEGORIES:Holidays,Seasonal Events
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230116
DTEND;VALUE=DATE:20230117
DTSTAMP:20260410T165915
CREATED:20230110T193613Z
LAST-MODIFIED:20230110T200438Z
UID:15830-1673827200-1673913599@bdsrafoundation.org
SUMMARY:Martin Luther King Jr. Day (Office Closed)
DESCRIPTION:The BDSRA Foundation office will be closed on Monday\, January 16th in observance of Martin Luther King Jr. Day.
URL:https://bdsrafoundation.org/event/martin-luther-king-jr-day-2023-office-closed/
CATEGORIES:Holidays
END:VEVENT
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