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X-ORIGINAL-URL:https://bdsrafoundation.org
X-WR-CALDESC:Events for Batten Disease Support & Research Association
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DTSTART;VALUE=DATE:20251028
DTEND;VALUE=DATE:20251102
DTSTAMP:20260415T014458
CREATED:20250327T185428Z
LAST-MODIFIED:20250522T130851Z
UID:20924-1761609600-1762041599@bdsrafoundation.org
SUMMARY:NCL 2025 in Australia
DESCRIPTION:  \n \n\n \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n \n\n\n\n\n\n\n\n\n\n\n\n\n\nOn behalf of the NCL2025 Organizing Committee\, BDSRA Australia is thrilled to be hosting the 19th International Congress on Neuronal Ceroid Lipofuscinosis (NCL) in the stunning surrounds of the Sunshine Coast\, Queensland\, Australia. As the premier conference on Batten disease\, the bi-annual NCL Congress brings together world-leading researchers\, healthcare providers\, industry partners\, innovators and patient advocacy leaders from around the globe. \nBDSRA Australia looks forward to welcoming you to the Sunshine Coast in October 2025 for what promises to be a truly memorable event. \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nStephanie Hughes \nChair \nNCL 2025 International Congress \n\n\n\n\n\n\n\n\n\n\n\n\nIneka Whiteman \nChair \nNCL 2025 International Congress &\nBDSRA Australia Family Conference 2025 \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nAbstract Submissions are now open for the 19th International Congress on Neuronal Ceroid Lipofuscinosis (NCL). \nSubmit your abstract to play an important role in NCL 2025! \n\n\n\n\n\n\n\n\n\n \nREGISTER HERE\n \n\n\n\n\n\n\n\n\n\n\n\n\n\n \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nAbstract Submissions are now open for the 19th International Congress on Neuronal Ceroid Lipofuscinosis (NCL). \nSubmit your abstract to play an important role in NCL 2025! \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n \nSUBMIT YOUR ABSTRACT HERE\n \n\n\n\n\n\n\n\n\n\n\n\n\n\n \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nNCL 2025 is has secured discounted rates for the Congress and bookings can be made via Groups 360\, which is external to the registration system. This booking process will provide delegates with greater flexibility to add extra nights\, breakfast offerings as well as including any hotel loyalty programs. \nBOOKINGS WILL CLOSE ON WEDNESDAY\, JULY 30\, 2025 \n\n\n\n\n\n\n\n\n\n \nVIEW THE INSTRUCTIONS VIA THE WEBSITE\n \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\nThere is a range of sponsorship and exhibition opportunities available at NCL 2025. To receive a copy of the 2025 Sponsorship Prospectus\, or for any sponsorship enquiries\, please contact: \nTravis Clarke  travis.c@asnevents.net.au \n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n\n 
URL:https://bdsrafoundation.org/event/ncl-2025-in-australia/
CATEGORIES:Research
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240118T150000
DTEND;TZID=America/New_York:20240118T160000
DTSTAMP:20260415T014458
CREATED:20240104T172002Z
LAST-MODIFIED:20240118T151902Z
UID:18326-1705590000-1705593600@bdsrafoundation.org
SUMMARY:CLN7 Batten Disease Research Update
DESCRIPTION:Elpida Therapeutics will host an open virtual meeting via Zoom on Thursday\, January 18\, from 3-4 p.m. EST\, to provide an update on the ongoing gene therapy trial for treating CLN7 Batten disease\, which has been led by the University of Texas Southwestern Medical Center. \nThey will discuss their plans to expand the treatment to more patients in the future\, and how our patient community can help move this program forward. Please note that this meeting is primarily for families affected by CLN7 disease but is open to all Batten families\, researchers\, clinicians\, patient advocacy groups\, etc. who wish to attend. \nJoin the Zoom meeting by clicking the link below. \nLink: https://us02web.zoom.us/j/9890666291?omn=87196549060 \nMeeting ID: 989 066 6291
URL:https://bdsrafoundation.org/event/cln7-batten-disease-research-update/
LOCATION:Zoom
CATEGORIES:Research
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