Panda Express Fundraiser
2026-02-27
CLICK HERE FOR DETAILS!

No-Show St. Patrick's Day Dinner Fundraiser
2026-03-17
CLICK HERE TO LEARN MORE AND PARTICIPATE

Grief Chat
2026-04-19 19:00 - 20:00 (America/New_York) | Zoom
The next scheduled chat is Sunday, April 19, 2026, at 7 PM EDT.
Session details for April 19 – Anticipatory Grief: How do I move forward when my family has not? Grief can move at different speeds, and it can be especially hard when your path forward feels different from those around you. This space offers gentle support for sharing, reflecting, and moving forward while honoring your grief.
REGISTERING: You only need to complete the registration form below once, and you will receive a Zoom link that works for all future Grief Chats, along with multiple email reminders before each chat. You are not required to sign up for or attend each scheduled chat.
About the BDSRA Grief Chats: BDSRA, as part of its Life Goes On program for bereaved parents, and its facilitators are committed to providing the Batten community with regular opportunities to come together and share. These virtual grief chats take place every other month at 7 PM EST and provide an opportunity for bereaved Batten parents to gather and support one another, regardless of where they are on their grief journey.
Click here to register.

Conference Grants Deadline
2026-05-17
CLICK HERE TO LEARN MORE AND APPLY.

Monthly Coffee Chat
2026-05-19 12:00 - 13:00 | Zoom
Hosted by Batten parent Heather Dainiak, these chats are a safe space for parents and caregivers of all CLN types in the United States, Canada, and abroad—no pressure, no obligation—just understanding, connection, and a chance to breathe.
Session Details for May 19: A gentle space to pause, connect, and share honestly with fellow Batten parents who understand this journey. This conversation is not about having the right words or solutions, but about being seen, supported, and heard. Whether you feel like talking or just listening, you are welcome here.
NOTE: You only have to complete the registration form once, and you will receive the Zoom link for all future Coffee Chats. The Zoom link will remain the same for all chats. You will also receive email reminders for each upcoming Coffee Chat.
Click here to register.

Conference Volunteer/Program Meeting Updates
2026-05-20 17:00 - 18:00 | Zoom
Annual Family Conference Volunteer Info
1. Get all the details here.
2. Email Heather@bdsrafoundation.org and indicate which committee they would like to join.
3. Sign up for the Volunteer Email List, click here.
Meetings with 2026 BDSRA Annual Family Conference Volunteers will be at 5 PM EDT on the dates listed below. You will receive reminder emails from BDSRA with the Zoom link to join each meeting after you sign up for the email list:

Wednesday, March 18
Wednesday, April 15
Wednesday, May 20
Wednesday, June 17

2026 BDSRA Annual Family Conference in Chicago, IL
2026-07-10 - 2026-07-12
CLICK HERE TO VISIT THE MAIN 2026 CONFERENCE PAGE
