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X-ORIGINAL-URL:https://bdsrafoundation.org
X-WR-CALDESC:Events for Batten Disease Support & Research Association
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260517
DTEND;VALUE=DATE:20260518
DTSTAMP:20260425T105106
CREATED:20260401T193923Z
LAST-MODIFIED:20260401T193923Z
UID:24632-1778976000-1779062399@bdsrafoundation.org
SUMMARY:Conference Grants Deadline
DESCRIPTION:CLICK HERE TO LEARN MORE AND APPLY.
URL:https://bdsrafoundation.org/event/2026-batten-disease-conference-grants/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260519T120000
DTEND;TZID=America/New_York:20260519T130000
DTSTAMP:20260425T105106
CREATED:20250212T162624Z
LAST-MODIFIED:20260424T185351Z
UID:20758-1779192000-1779195600@bdsrafoundation.org
SUMMARY:Monthly Coffee Chat
DESCRIPTION:Hosted by Batten parent Heather Dainiak\, these chats are a safe space for parents and caregivers of all CLN types in the United States\, Canada\, and abroad—no pressure\, no obligation—just understanding\, connection\, and a chance to breathe.  \nSession Details for May 19: A gentle space to pause\, connect\, and share honestly with fellow Batten parents who understand this journey. This conversation is not about having the right words or solutions\, but about being seen\, supported\, and heard. Whether you feel like talking or just listening\, you are welcome here. \nNOTE: You only have to complete the registration form once\, and you will receive the Zoom link for all future Coffee Chats. The Zoom link will remain the same for all chats. You will also receive email reminders for each upcoming Coffee Chat.  \nClick here to register.
URL:https://bdsrafoundation.org/event/coffee-chat/
LOCATION:Zoom
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T170000
DTEND;TZID=America/New_York:20260520T180000
DTSTAMP:20260425T105106
CREATED:20260227T185442Z
LAST-MODIFIED:20260424T193845Z
UID:24463-1779296400-1779300000@bdsrafoundation.org
SUMMARY:Conference Volunteer/Program Meeting Updates
DESCRIPTION:Annual Family Conference Volunteer Info\n1. Get all the details here. \n2. Email Heather@bdsrafoundation.org and indicate which committee they would like to join. \n3. Sign up for the Volunteer Email List\, click here. \nMeetings with 2026 BDSRA Annual Family Conference Volunteers will be at 5 PM EDT on the dates listed below. You will receive reminder emails from BDSRA with the Zoom link to join each meeting after you sign up for the email list: \n\nWednesday\, March 18\nWednesday\, April 15\nWednesday\, May 20\nWednesday\, June 17
URL:https://bdsrafoundation.org/event/conference-volunteer-meeting/
LOCATION:Zoom
CATEGORIES:Annual Family Conference
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260710
DTEND;VALUE=DATE:20260713
DTSTAMP:20260425T105106
CREATED:20260107T192241Z
LAST-MODIFIED:20260408T193839Z
UID:24289-1783641600-1783900799@bdsrafoundation.org
SUMMARY:2026 BDSRA Annual Family Conference in Chicago\, IL
DESCRIPTION:  \nCLICK HERE TO VISIT THE MAIN 2026 CONFERENCE PAGE
URL:https://bdsrafoundation.org/event/2026-bdsra-annual-family-conference-in-chicago-il/
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