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X-ORIGINAL-URL:https://bdsrafoundation.org
X-WR-CALDESC:Events for Batten Disease Support & Research Association
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DTSTART;VALUE=DATE:20220222
DTEND;VALUE=DATE:20220303
DTSTAMP:20260421T221017
CREATED:20220118T203732Z
LAST-MODIFIED:20220118T203732Z
UID:13654-1645488000-1646265599@bdsrafoundation.org
SUMMARY:Rare Disease Week on Capitol Hill
DESCRIPTION:Rare Disease Week on Capitol Hill brings together rare disease community members from across the country to be educated on federal legislative issues\, meet other advocates\, and share their unique stories with legislators. \n\nRare Disease Week
URL:https://bdsrafoundation.org/event/bdsra-rare-disease-week-on-capitol-hill/
CATEGORIES:Advocacy Event
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DTSTART;TZID=America/New_York:20220221T170000
DTEND;TZID=America/New_York:20220221T180000
DTSTAMP:20260421T221017
CREATED:20220113T190922Z
LAST-MODIFIED:20220215T163319Z
UID:13620-1645462800-1645466400@bdsrafoundation.org
SUMMARY:Ask-An-Expert: Research Edition
DESCRIPTION:Registration is now open! Join us for Ask-An-Expert: Research Edition on Monday\, February 21st at 5p EST with Dr. David Pearce. Ask questions and learn about research updates important to our Batten Community during this LIVE Q&A. Register with the link and join from Facebook Live or the webinar link that will be sent via email upon registration. Register with the link provided.
URL:https://bdsrafoundation.org/event/aae222/
LOCATION:Zoom
ORGANIZER;CN="BDSRA":MAILTO:info@bdsra.org
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DTSTART;TZID=America/New_York:20220118T180000
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CREATED:20220118T203002Z
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UID:13644-1642528800-1642532400@bdsrafoundation.org
SUMMARY:Ask-An-Expert: Clinical Edition
DESCRIPTION:Ask-An-Expert: Clinical Edition | January 18th | 6p EST\nLearn about clinical updates and ask questions during this LIVE Q&A with Dr. Erika Augustine. Register here: https://web.charityengine.net/ClinicalEdition_Jan2022/
URL:https://bdsrafoundation.org/event/ask-an-expert-clinical-edition/
CATEGORIES:Ask-An-Expert
ORGANIZER;CN="BDSRA":MAILTO:info@bdsra.org
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