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X-WR-CALNAME:Batten Disease Support &amp; Research Association
X-ORIGINAL-URL:https://bdsrafoundation.org
X-WR-CALDESC:Events for Batten Disease Support &amp; Research Association
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UID:13751-1649185200-1649188800@bdsrafoundation.org
SUMMARY:Support Group Leader Training
DESCRIPTION:  \nBDSRA wants to take a moment to thank you for your vulnerability and willingness to step into a leadership role. Volunteering to share your heart\, skills\, and experience will undoubtedly have a huge impact on those who walk through this journey with you. \nWe hope this training gives you some extra tools to be the best leader\, friend and support to those in your group. We also would like to acknowledge the hard work and dedication it takes to facilitate a peer support group\, and we want you to know we are here to support each of you. \nTo Register Visit: https://web.charityengine.net/SupportGroupLDR0405
URL:https://bdsrafoundation.org/event/bdsra-support-group-leader-training/
LOCATION:Zoom
CATEGORIES:Peer Support Group Leader Training
ORGANIZER;CN="BDSRA":MAILTO:info@bdsra.org
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DTSTART;TZID=America/New_York:20220420T180000
DTEND;TZID=America/New_York:20220420T190000
DTSTAMP:20260617T064232
CREATED:20220330T172605Z
LAST-MODIFIED:20220330T172721Z
UID:13797-1650477600-1650481200@bdsrafoundation.org
SUMMARY:Ask-An-Expert: Courageous Parents Network Edition
DESCRIPTION:Join us for Ask-An-Expert: Courageous Parents Network Edition on April 20th at 6:00p ET. \nPlease join BDSRA and Courageous Parents Network as Lord Taylor Blyth; Founder and Executive Director\, CPN presents:\nWhen the Ground Shifts; Changes in Your Child’s Baseline and Anticipatory Grief 
URL:https://bdsrafoundation.org/event/13797/
CATEGORIES:Ask-An-Expert
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DTSTART;TZID=America/New_York:20220422T080000
DTEND;TZID=America/New_York:20220422T080000
DTSTAMP:20260617T064232
CREATED:20220330T160129Z
LAST-MODIFIED:20220330T160203Z
UID:13792-1650614400-1650614400@bdsrafoundation.org
SUMMARY:Facebook: Equipment Exchange Swap Day
DESCRIPTION:  \nThis is an opportunity for individuals and families to declutter unused equipment and assist other families in the process. \nAll items posted in the group on the 22 will be viewable to the community. We encourage you to search for items you need and post items you would like to see go to a new home. \nTo learn more about our year-round equipment exchange efforts visit: https://bdsrafoundation.org/family-grants/ \nTo Participate you must have a Facebook account- Link Below! \nEarth Day Equipment Exchange Swap Day | Facebook
URL:https://bdsrafoundation.org/event/facebook-equipment-exchange-swap-day/
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