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X-WR-CALNAME:Batten Disease Support &amp; Research Association
X-ORIGINAL-URL:https://bdsrafoundation.org
X-WR-CALDESC:Events for Batten Disease Support &amp; Research Association
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TZID:America/New_York
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DTSTART:20220313T070000
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DTSTART:20221106T060000
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DTSTART:20230312T070000
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DTSTART:20231105T060000
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DTSTART:20240310T070000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231002T190000
DTEND;TZID=America/New_York:20231002T200000
DTSTAMP:20260521T151014
CREATED:20230918T201651Z
LAST-MODIFIED:20230918T201651Z
UID:18063-1696273200-1696276800@bdsrafoundation.org
SUMMARY:Fall Grief Chat
DESCRIPTION:Join the Batten community for BDSRA’s Fall Grief Chat on October 2 at 7 p.m. EDT. Three sessions lead by community members will be offered — one each for Bereaved SIBs (led by SIBs leader Jeni Montavon)\, active parents and caregivers (led by Dr. Joseph Vigil)\, and bereaved parents and caregivers as part of the Life Goes On program (led by bereaved parent Peggy DiCapua). \nPlease select a ticket for the session that best fits your needs. Please register individually. Once you register\, you will receive an email confirmation and a Zoom link for the session you chose. \nClick here to register.
URL:https://bdsrafoundation.org/event/fall-grief-chat-october-2023/
LOCATION:Zoom
CATEGORIES:Grief Chat
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231024T180000
DTEND;TZID=America/New_York:20231024T190000
DTSTAMP:20260521T151014
CREATED:20231002T142042Z
LAST-MODIFIED:20231019T130052Z
UID:18110-1698170400-1698174000@bdsrafoundation.org
SUMMARY:2023 Boo Bash
DESCRIPTION:Grab your costumes and join us for a frightfully FUN time at the 2023 Boo Bash taking place on Tuesday\, October 24 at 6 PM EDT via Zoom! \nThe deadline to order party kits has passed. You may purchase the supplies by visiting clicking the links below. \n“How to Catch a Witch” Book \nBoo Bash Craft \nA zoom link will be sent to the email address you use to register\, along with instructions on how to join in the SPOOK-tacular fun. Families are welcome to request a kit for each child who will be participating! \nClick here to register!
URL:https://bdsrafoundation.org/event/2023-boo-bash/
LOCATION:Zoom
CATEGORIES:Holidays,Seasonal Events
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