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X-ORIGINAL-URL:https://bdsrafoundation.org
X-WR-CALDESC:Events for Batten Disease Support & Research Association
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DTSTART:20240310T070000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250301T130000
DTEND;TZID=America/New_York:20250301T140000
DTSTAMP:20260423T222030
CREATED:20250214T214813Z
LAST-MODIFIED:20250214T214813Z
UID:20777-1740834000-1740837600@bdsrafoundation.org
SUMMARY:SIBs Mid-Season Social
DESCRIPTION:The SIBs Mid-Season Social on Saturday\, March 1\, 2025\, is open to BATTEN SIBLINGS ONLY. Batten siblings of all ages are welcome\, including those who haven’t participated in the SIBs program before. This event is an opportunity for SIBs to reconnect with fellow Batten SIBs and for those new to the program to introduce themselves. A Zoom link to join the event will be available in your confirmation email after you register. \nClick here for more registration details.
URL:https://bdsrafoundation.org/event/sibs-mid-season-social-2/
LOCATION:Zoom
CATEGORIES:SIBs
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250330
DTEND;VALUE=DATE:20250331
DTSTAMP:20260423T222030
CREATED:20250321T203938Z
LAST-MODIFIED:20250321T204021Z
UID:20915-1743292800-1743379199@bdsrafoundation.org
SUMMARY:DEADLINE: International Batten Disease Awareness Day T-Shirt Design Contest
DESCRIPTION:T-Shirt Contest: IT’S BACK AGAIN! For the third straight year\, we are holding another T-shirt contest to determine the design of this year’s International Batten Disease Awareness Day T-shirt! Previous winners include: \n2024: Kennedy Reed\n2023: Kris Bonagofsky \nDEADLINE: Design Submissions will be accepted through 11:59 p.m. EDT on Sunday\, March 30th. Submissions are limited to one per person. \n\nBDSRA will narrow submissions down to three finalists in early April. Once there are three finalists\, the community will vote on the winner\, which will be unveiled later in April. \nPlease find the design guidelines\, instructions\, and deadline for this year’s contest by clicking here.
URL:https://bdsrafoundation.org/event/deadline-international-batten-disease-awareness-day-t-shirt-design-contest/
CATEGORIES:Advocacy Event
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