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X-ORIGINAL-URL:https://bdsrafoundation.org
X-WR-CALDESC:Events for Batten Disease Support & Research Association
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DTSTART;VALUE=DATE:20250609
DTEND;VALUE=DATE:20250610
DTSTAMP:20260421T113644
CREATED:20250418T154302Z
LAST-MODIFIED:20250418T154302Z
UID:21291-1749427200-1749513599@bdsrafoundation.org
SUMMARY:2025 International Batten Disease Awareness Day & Virtual 5K
DESCRIPTION:CLICK BELOW FOR ALL INFORMATION ON INTERNATIONAL BATTEN DISEASE AWARENESS DAY AND THE VIRTUAL 5K! \nCLICK HERE.
URL:https://bdsrafoundation.org/event/2025-international-batten-disease-awareness-day-virtual-5k/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250617T193000
DTEND;TZID=America/New_York:20250617T203000
DTSTAMP:20260421T113644
CREATED:20250516T131532Z
LAST-MODIFIED:20250516T131532Z
UID:21384-1750188600-1750192200@bdsrafoundation.org
SUMMARY:Newly Diagnosed & First-Time Conference Attendee Orientation
DESCRIPTION:BDSRA will hold a Newly Diagnosed & First-Time Conference Attendee Orientation on Tuesday\, June 17\, at 7:30 PM EDT. \nThis virtual event will be a casual forum for conversation with families who have recently received a Batten disease diagnosis as well as those who are interested in attending the Annual Family Conference this July. Attendees will receive more information about BDSRA\, the disease\, helpful resources\, the conference\, and more during this event. \nClick here to register for this virtual event.
URL:https://bdsrafoundation.org/event/newly-diagnosed-first-time-conference-attendee-orientation/
LOCATION:Zoom
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