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DTSTART;TZID=America/New_York:20251201T200000
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UID:24034-1764619200-1764622800@bdsrafoundation.org
SUMMARY:Ask-An-Expert: Navigating Joy and Sadness During the Holidays (TIME CHANGE)
DESCRIPTION:TIME CHANGE: This session will now begin at 8:00 PM EST on Monday\, December 1. \n \nWho’s Invited: Families caring for children with Batten disease and bereaved families \nJoin Jamie Freedlund for a gentle conversation about finding balance between joy and sadness during the holiday season. Together\, we’ll explore ways to honor emotions\, adjust traditions\, and embrace connection in whatever form the holidays take. You will receive the Zoom link to join this session via email\, along with reminders for the event\, after you register. \nClick here to learn more and register. 
URL:https://bdsrafoundation.org/event/batten-disease-expert-navigating-joy/
LOCATION:Zoom
CATEGORIES:Ask-An-Expert
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DTSTART;TZID=America/New_York:20251209T190000
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DTSTAMP:20260421T023530
CREATED:20251027T190251Z
LAST-MODIFIED:20251118T212209Z
UID:23982-1765306800-1765310400@bdsrafoundation.org
SUMMARY:Ask-An-Expert: NCL Congress and BDSRA Australia Conference Updates (RESCHEDULED)
DESCRIPTION:UPDATE (11/18/2025): This event has been rescheduled for Tuesday\, December 9\, at 7 PM EST. If you’ve already registered\, the Zoom link you’ve received in your registration confirmation email and email reminders is still the correct link to join the session. \n \nLet’s dive into some research and clinical updates! \nAfter attending the 19th International Congress on Neuronal Ceroid Lipofuscinosis (NCL) and BDSRA Australia’s Family Conference\, BDSRA Head of Research & Medical Affairs\, Ineka Whiteman\, PhD\, and Jonathan Cooper\, PhD\, of Washington University in St. Louis\, will recap the events\, share updates\, and answer your questions.  \nClick here to learn more and register. 
URL:https://bdsrafoundation.org/event/ask-an-expert-ncl-congress-and-bdsra-australia-conference-updates/
LOCATION:Zoom
CATEGORIES:Ask-An-Expert
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