Family Grants – Financial Help for Batten Families

BDSRA has multiple grants available to assist Batten Families. For any questions on family grants, please send an email to info@bdsrafoundation.org 

Batten Family Help Grant

Batten Family Help Grant

The BDSRA understands that families in our community caring for people with Batten disease are often faced with financial challenges that further interfere with their well-being. To help, BDSRA offers the Batten Family Help Grant to be used in a variety of ways.

Some examples are emergency travel, excessive bills, unexpected cost, safety hazards, etc.

apply for the Batten Family Help Grant

BDSRA Equipment Exchange

The Equipment Exchange is an opportunity for individuals and families to gift unused equipment to other families who are in need. All items exchanged through this program are required to be free of charge, and BDSRA will cover shipping costs to help facilitate the exchange without additional burden. BDSRA hosts an annual swap party on Earth Day each year on our Facebook to help facilitate the exchange.

apply for the BDSRA Equipment Exchange
Amelia’s Bed
Fore The Journey Fund

Fore The Journey Fund

The journey through Batten disease can be challenging and families cherish moments that bring happiness to their children. A visit to a zoo, sports lessons, or a swim in a community pool can provide much-needed smiles. The Fore The Journey Grant is a joint collaboration with the BDSRA and the ForeBatten Foundation. This unique grant offers Batten families experiences, memberships, and gifts to provide those happy moments. Your request can be as individual as you! 

apply for the Fore the Journey Fund