Rachael Sharp

Finnish Late Infantile — CLN5
Birth Date: 04/30/1996
Deceased Date: 09/01/2013
Location: Vacaville, CA, U.S.

How old are your family members diagnosed with Batten Disease?

When were they first diagnosed?

What are the three biggest challenges you face each week?

What advice would you give to a family with a newly-diagnosed family member?

Do you have a favorite quote or memory of your child that you’d like to share?