We created the Noah’s Hope Fund to support research, raise funds, and inform the community before we knew that Laine would also fight this terrible disease. Now we pour ourselves into Noah’s Hope for the benefit of both Noah and Laine, and for Emily who will watch as her siblings travel on this difficult journey.
This website will show you how to support Noah’s Hope through fundraising, events, and donations. Explore the site to learn more about Noah and Laine’s stories, and about Batten Disease. Please become part of Noah’s Hope, and encourage others to get involved. We believe that a cure will soon be available, and we will absolutely fight until it is. Together we can make a difference.
