Important Dates For The Batten Disease Community

• HAPPENING NOW: Vote for your favorite International Batten Disease Awareness Day T-shirt design by April 7 at 11:59 PM EDT!
• April 5: Distribution of The Illuminator, so watch your inbox.
• April 7: LAST DAY to vote for the T-shirt design.
• April 9: Ask-An-Expert at 5 PM EDT, featuring Dr. Paulo Falabella from REGENXBIO and Dr. Ewa Ziółkowska from Washington University in St. Louis.
• April 10: Early Bird Registration opens for the Annual Family Conference July 12-14. We hope to see you there!
• April 15: DEADLINE for Conference Grant Applications.
• April 21: Grief Chat at 7 PM EDT. Prior registration is required for newcomers.

We’ll continue to post on all of our social channels, especially for any updates. We ask you to like and share the posts because it helps others to find us and our offerings. We invite you to share all of this information in the Closed Parent Facebook Group and your own CLN Groups too.We’ll be busy preparing for all these events, and we look forward to seeing you there!

Amy Fenton Parker, BDSRA Foundation President & CEO