The BDSRA Foundation Fam Funds program empowers our Batten families to share their Batten journeys, connect with fellow families, and raise funds for BDSRA. Families may choose where donations are directed: Greatest Need, Support, Research, or Advocacy. Learn about our families affected by Batten disease by clicking the pictures or family names below.

Click the button below to create your own Fam Fund. For any questions, please send an email to support@bdsrafoundation.org.

Click Here to Get Started

Meet Batten Families