FEBRUARY 2026 NEWSLETTER | The Illuminator From BDSRA
February 2026 [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | February 2026
It's time for Batten disease research updates! BDSRA Foundation's [...]
GET INVOLVED: Rare Disease Week 2026
Want to get involved? Visit our website to see [...]
Batten Disease: Rare Disease Week 2026
Click below to learn more about what you can [...]
Latest Batten Disease and BDSRA Fundraiser & Conference News
Shop to benefit BDSRA and the Batten Community! SHOP [...]
JANUARY 2026 NEWSLETTER | The Illuminator From BDSRA
January 2026 [...]
BDSRA Foundation Announces Boys Town National Research Hospital as New Site in Clinical Centers of Excellence Program; Two Sites Earn CoE Promotions
GAHANNA, OH (January 29, 2026) – The Batten Disease [...]
FINAL CALL: 2026 Conference Theme Ideas
It's the final call for theme ideas for the [...]
Important Announcement: Building a Stronger Future for BDSRA
January 14, 2026 Dear Community, For 39 years, BDSRA has [...]
BDSRA 2026 Annual Family Conference | Ideas from Batten Disease Community
Here’s a look back at some of the Annual [...]
