Kennedy Krieger Institute Awarded $8.17 Million Grant To Lead National Research Consortium; Will Work Closely With The BDSRA Foundation
PRESS RELEASE: [...]
NOVEMBER ASK-AN-EXPERT EVENT POSTPONED; WILL BE RESCHEDULED
The next Ask-An-Expert session, which was scheduled for Tuesday, [...]
OCTOBER 2025 NEWSLETTER | The Illuminator From BDSRA
October 2025 [...]
From Voices to Breakthroughs—the 2025 NORD Breakthrough Summit | Batten Disease
Written by BDSRA Foundation President & CEO Amy Fenton Parker [...]
Read BDSRA’s 2024 Impact Report | Batten Disease
Dear Friend, Because of your support, 2024 was a [...]
SEPTEMBER 2025 NEWSLETTER | The Illuminator From BDSRA
September 2025 [...]
PUBLICATION ALERT: Batten Disease Research Goals Published in The Lancet Neurology
In 2024, recognizing the urgent need to establish research [...]
BDSRA Foundation Announces Mount Sinai Health System as New Site in Clinical Centers of Excellence Program
GAHANNA, OH (September 22, 2025) – The BDSRA Foundation [...]
EVENT: First Carolinas Batten Disease Family Day!
The following is a message from the Carolinas Batten [...]
The 2026 Conference will take place…
As our conference attendees found out during July’s conference, [...]
