News – Batten Disease Support & Research Association

SEPTEMBER 2025 NEWSLETTER | The Illuminator From BDSRA

September 2025 [...]

By Patrick Kotnik|2025-10-03T13:39:52-04:00October 3rd, 2025|Latest News|Comments Off

In 2024, recognizing the urgent need to establish research [...]

By Patrick Kotnik|2025-10-03T13:38:44-04:00October 3rd, 2025|Clinical News, Latest News, Research News|Comments Off

GAHANNA, OH (September 22, 2025) – The BDSRA Foundation [...]

By Patrick Kotnik|2025-09-22T13:02:44-04:00September 22nd, 2025|Clinical News, Latest News, Research News|Comments Off

The following is a message from the Carolinas Batten [...]

By Patrick Kotnik|2025-09-11T12:01:30-04:00September 11th, 2025|Advocacy, Latest News|Comments Off

As our conference attendees found out during July’s conference, [...]

By Patrick Kotnik|2025-09-04T11:57:58-04:00September 8th, 2025|Latest News, Resource Corner|Comments Off

August 2025 [...]

By Patrick Kotnik|2025-09-03T16:15:16-04:00September 3rd, 2025|Latest News|Comments Off

Expressions of Interest are now open for the 2025-26 [...]

By Patrick Kotnik|2025-09-03T14:38:42-04:00August 20th, 2025|Latest News, Research News|Comments Off

It's time for Batten disease research updates! BDSRA Foundation's [...]

By Patrick Kotnik|2025-08-18T09:09:25-04:00August 15th, 2025|Clinical News, Latest News, Research News|Comments Off

July 2025 [...]

By Patrick Kotnik|2025-07-31T14:34:18-04:00July 31st, 2025|Latest News|Comments Off

At the latest [...]

By Patrick Kotnik|2025-07-25T11:24:16-04:00July 28th, 2025|Latest News|Comments Off