Important Announcement: Building a Stronger Future for BDSRA
January 14, 2026 Dear Community, For 39 years, BDSRA has [...]
BDSRA 2026 Annual Family Conference | Ideas from Batten Disease Community
Here’s a look back at some of the Annual [...]
BDSRA Foundation Welcomes Four New Board Members
The BDSRA Foundation is proud to welcome four new [...]
How BDSRA Supports Bereaved and Actively Caring Batten Disease Families
The BDSRA Annual Family Conference is a haven [...]
Batten Disease | BDSRA Foundation Bids Two Board Members Farewell
Darlene Royalty “Darlene has been a valuable source [...]
Why fundraise for BDSRA and Batten disease?
“If every single person on the planet knew [...]
Why NOW is the time to give to BDSRA
Thanks to YOUR generosity, major initiatives like the [...]
HOLIDAY NEWSLETTER | The Illuminator From BDSRA
Holiday Season 2025 [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | Sept-Nov 2025
It’s time for Batten disease research updates! BDSRA Foundation’s [...]
CLN2 Batten Disease Update from Tern Therapeutics
More positive news for our CLN2 community this week, [...]
