News – Batten Disease Support & Research Association

EVENT: First Carolinas Batten Disease Family Day!

The following is a message from the Carolinas Batten [...]

By Patrick Kotnik|2025-09-11T12:01:30-04:00September 11th, 2025|Advocacy, Latest News|Comments Off

As our conference attendees found out during July’s conference, [...]

By Patrick Kotnik|2025-09-04T11:57:58-04:00September 8th, 2025|Latest News, Resource Corner|Comments Off

August 2025 [...]

By Patrick Kotnik|2025-09-03T16:15:16-04:00September 3rd, 2025|Latest News|Comments Off

Expressions of Interest are now open for the 2025-26 [...]

By Patrick Kotnik|2025-09-03T14:38:42-04:00August 20th, 2025|Latest News, Research News|Comments Off

It's time for Batten disease research updates! BDSRA Foundation's [...]

By Patrick Kotnik|2025-08-18T09:09:25-04:00August 15th, 2025|Clinical News, Latest News, Research News|Comments Off

July 2025 [...]

By Patrick Kotnik|2025-07-31T14:34:18-04:00July 31st, 2025|Latest News|Comments Off

At the latest [...]

By Patrick Kotnik|2025-07-25T11:24:16-04:00July 28th, 2025|Latest News|Comments Off

July 18, 2025—Batten Disease Support, Research, and Advocacy (BDSRA) Canada, [...]

By Patrick Kotnik|2025-07-18T16:41:03-04:00July 18th, 2025|Advocacy, Clinical News, Latest News, Research News|Comments Off

Overall Conference Survey Life Goes On Survey Childcare [...]

By Patrick Kotnik|2025-07-13T01:50:08-04:00July 13th, 2025|Latest News|Comments Off

THANK YOU to 10/11 News and News Channel Nebraska [...]

By Patrick Kotnik|2025-07-12T01:58:43-04:00July 12th, 2025|Latest News|Comments Off