News – Batten Disease Support & Research Association

The Latest BDSRA & Batten Disease Community Events and Updates

Included in this email update: Batten Disease Global Research [...]

By Patrick Kotnik|2025-03-10T14:05:58-04:00March 11th, 2025|Advocacy, Latest News, Research News|Comments Off

THERE'S LOTS GOING ON! TODAY'S Nationwide Panda Express Fundraiser [...]

By Patrick Kotnik|2025-02-27T18:57:04-05:00February 28th, 2025|Latest News|Comments Off

The following letter from Tern Therapeutics shares the latest on [...]

By Patrick Kotnik|2025-02-27T11:17:37-05:00February 27th, 2025|Clinical News, Latest News, Research News|Comments Off

While Rare Disease Week on Capitol Hill attendees meet [...]

By Patrick Kotnik|2025-02-25T17:54:43-05:00February 26th, 2025|Advocacy, Latest News|Comments Off

28% of Panda Express Online Sales go to BDSRA [...]

By Patrick Kotnik|2025-02-18T15:23:40-05:00February 18th, 2025|Latest News|Comments Off

The BDSRA Foundation is thrilled to welcome Gretchen Fieschko to [...]

By Patrick Kotnik|2025-02-04T11:08:21-05:00February 10th, 2025|Latest News|Comments Off

January 2025 [...]

By Patrick Kotnik|2025-01-31T07:36:21-05:00January 31st, 2025|Latest News|Comments Off

It's time for the first Batten disease research updates [...]

By Patrick Kotnik|2025-01-30T11:29:34-05:00January 30th, 2025|Clinical News, Latest News, Research News|Comments Off

*First 50 Responses will be mailed a $10 Dunkin' [...]

By Patrick Kotnik|2025-01-21T09:47:34-05:00January 21st, 2025|Advocacy, Latest News|Comments Off

Beth Fries We have contracted Beth Fries, a [...]

By Patrick Kotnik|2025-01-16T11:00:42-05:00January 16th, 2025|Advocacy, Latest News|Comments Off