News – Batten Disease Support & Research Association

Batten Disease Families Need Your Support

CLICK HERE TO DONATE TO BDSRA Here's How You [...]

By Patrick Kotnik|2024-11-21T16:44:08-05:00November 26th, 2024|Latest News|Comments Off

The BDSRA Annual Family Conference is a staple with [...]

By Patrick Kotnik|2024-11-19T10:14:12-05:00November 19th, 2024|Latest News|Comments Off

The BDSRA Foundation 2023 Impact Report is here! We [...]

By Patrick Kotnik|2024-11-07T08:15:22-05:00November 7th, 2024|Latest News|Comments Off

October 2024 [...]

By Patrick Kotnik|2024-11-01T09:43:32-04:00November 1st, 2024|Latest News|Comments Off

It's time for research updates! BDSRA Foundation's Head of [...]

By Patrick Kotnik|2024-10-31T16:51:56-04:00October 31st, 2024|Clinical News, Latest News, Research News|Comments Off

September 2024 [...]

By Patrick Kotnik|2024-10-03T14:47:20-04:00October 3rd, 2024|Latest News|Comments Off

KANSAS CITY, Mo. – The Batten Disease Support, Research, and [...]

By Patrick Kotnik|2024-10-02T14:02:53-04:00October 2nd, 2024|Advocacy, Latest News|Comments Off

We applaud the news from our friends at ForeBatten Foundation [...]

By Patrick Kotnik|2024-09-25T15:34:32-04:00September 25th, 2024|Clinical News, Latest News, Research News|Comments Off

August 2024 [...]

By Patrick Kotnik|2024-08-30T15:53:59-04:00August 29th, 2024|Latest News|Comments Off

It's time for research updates! BDSRA Foundation's Head of [...]

By Patrick Kotnik|2024-09-03T10:34:48-04:00August 29th, 2024|Clinical News, Latest News, Research News|Comments Off