UPCOMING EVENTS & DEADLINES
UPCOMING EVENTS There are LOTS of important events and [...]
Your Batten Disease Awareness Day Toolkit!
Hello Batten Community, As promised in this April's Illuminator, [...]
APRIL 2025 NEWSLETTER | The Illuminator From BDSRA
April 2025 [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | April 2025
It's time for Batten disease research updates! BDSRA Foundation's [...]
Register for Conference & Virtual 5K TODAY!
Research & clinical sessions, FREE childcare, activities for siblings [...]
Your Story Can Make a Difference | Join the BDSRA Fam Funds Movement
Written by Beth Fries Imagine turning your journey into [...]
BATTEN DISEASE AWARENESS DAY T-SHIRTS ARE HERE!
The 2025 International Batten Disease Awareness Day T-shirts are [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | February & March 2025
It's time for Batten disease research updates! BDSRA Foundation's [...]
The winner of the Batten Disease Awareness Day T-Shirt Design Contest is…
🚨 THE VOTES ARE IN! 🚨 Here is the [...]
BDSRA Annual Family Conference Registration is Open!
Annual Family Conference registration is open! Plus, we have [...]
