The winner of the Batten Disease Awareness Day T-Shirt Design Contest is…
🚨 THE VOTES ARE IN! 🚨 Here is the [...]
BDSRA Annual Family Conference Registration is Open!
Annual Family Conference registration is open! Plus, we have [...]
T-SHIRT DESIGN VOTING IS OPEN! Voting Closes Sunday
IT’S TIME TO VOTE! We’ve narrowed the Batten Awareness [...]
FEBRUARY/MARCH 2025 NEWSLETTER | The Illuminator From BDSRA
February/March 2025 [...]
Reserve Your Hotel Room(s) for the 2025 Annual Family Conference!
RESERVE YOUR HOTEL ROOM IN LINCOLN, NEBRASKA! The hotel [...]
BREAKING: Batten Disease Global Research Initiative Announces Grant Recipients
We are proud to announce the recipients of the [...]
The Latest BDSRA & Batten Disease Community Events and Updates
Included in this email update: Batten Disease Global Research [...]
IT’S RARE DISEASE DAY! 🦓 Here’s what we got going on
THERE'S LOTS GOING ON! TODAY'S Nationwide Panda Express Fundraiser [...]
CLINICAL UPDATE: Tern Therapeutics Gives CLN2 Batten Disease Update
The following letter from Tern Therapeutics shares the latest on [...]
TAKE ACTION for the Batten Disease Community
While Rare Disease Week on Capitol Hill attendees meet [...]
