Register for Conference & Virtual 5K TODAY!

Research & clinical sessions, FREE childcare, activities for siblings and bereaved Batten parents, and more – the BDSRA Annual Family Conference has something for ALL Batten families. Join us in Lincoln, Nebraska this July by registering today.

The BDSRA Foundation supports Batten families of ALL CLN types. By donating to BDSRA and helping us raise funds, you are making a difference for Batten families battling this devastating disease that has no cure. Join us in raising awareness and funds leading up to Batten Disease Awareness Day on June 9 by helping us reach our $100,000 goal.

🏃‍♀️ Register for the Batten Awareness Day Virtual 5K (June 9)

💻 Create your own fundraising page to rally your community

👕 Order T-shirts

💬 Share & raise awareness—because NO ONE battles Batten disease alone.

Funds raised will go towards the BDSRA Foundation’s greatest need(s). If you’re raising funds for this specific fundraiser through your Fam Fund, you may choose where your donations are directed.