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What Is Batten Disease?
What Is Batten Disease
Types of Batten Disease
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2024 BDSRA Annual Conference
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Batten Disease Centers of Excellence
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What Is Batten Disease?
What Is Batten Disease
Types of Batten Disease
Symptoms and Diagnosis
Annual Conference
2024 BDSRA Annual Conference
PHOTO GALLERY
2023 Conference Photo Gallery
2022 Conference Photo Gallery
Support
Batten Disease Centers of Excellence
Newly Diagnosed?
Meet Batten Families | Fam Funds
Family Grants
Family and Caregiver Support
Parenting and Finding Emotional Support
Parents and Family Members as Caregivers
Bereaved Parents and Caregivers
Nuts and Bolts of Care
Educational Resources
Support for Batten Siblings
Join the BDSRA Community
Resource Corner
Research
Global Research Initiative
Batten Disease Centers of Excellence
Clinical Trials & Natural History Studies Chart
Family Register
Research and Clinical News
Research and Treatments
Current RFPs
Research Awards 2019
Advocacy
2024 International Batten Disease Awareness Day
Advocacy Toolkit
Rare Disease Week
State and Local Initiatives
Hometown Efforts
Memorials
About
History and Mission
Our Staff
Our Board of Directors
How To Help
Investors
Financials and Reporting
International Partners
Contact
News
Illuminator Newsletter
Press and Media
Social Media
Events
Search for:
What Is Batten Disease?
What Is Batten Disease
Types of Batten Disease
Symptoms and Diagnosis
Annual Conference
2024 BDSRA Annual Conference
PHOTO GALLERY
2023 Conference Photo Gallery
2022 Conference Photo Gallery
Support
Batten Disease Centers of Excellence
Newly Diagnosed?
Meet Batten Families | Fam Funds
Family Grants
Family and Caregiver Support
Parenting and Finding Emotional Support
Parents and Family Members as Caregivers
Bereaved Parents and Caregivers
Nuts and Bolts of Care
Educational Resources
Support for Batten Siblings
Join the BDSRA Community
Resource Corner
Research
Global Research Initiative
Batten Disease Centers of Excellence
Clinical Trials & Natural History Studies Chart
Family Register
Research and Clinical News
Research and Treatments
Current RFPs
Research Awards 2019
Advocacy
2024 International Batten Disease Awareness Day
Advocacy Toolkit
Rare Disease Week
State and Local Initiatives
Hometown Efforts
Memorials
About
History and Mission
Our Staff
Our Board of Directors
How To Help
Investors
Financials and Reporting
International Partners
Contact
News
Illuminator Newsletter
Press and Media
Social Media
Events
Social Media
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Tom Evans
2024-03-19T15:23:53-04:00
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bdsra
#TBT to last year’s Dog Days of Summer party! Wh
NEW: The FDA has approved BioMarin’s Brineura fo
NCL RESEARCHERS CHALLENGE: Batten disease research
Together with our fellow founding members of the B
IN CASE YOU MISSED IT: We officially unveiled our
🚨 ONE WEEK REMINDER 🚨 You have until 11:59
Watch us dance, dance the night away 💃🎉 #BD
🚨 LAST CALL FOR CONFERENCE FEEDBACK 🚨 What
Gather your pups and pals because it’s almost ti
8 years later, the @citymuseum remains a Batten SI
So you just attended the BDSRA Annual Family Confe
🚨 FINAL SURVEY CALL 🚨 This is phase 2 of th
Who else had fun during Saturday night’s Dinner
What. A. Week. ❤️ Traveling home is difficult
There’s no better BDSRA Family Conference tradit
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