Instagram Feed
Facebook Feed
Facebook Posts
Eight-year-old Kennedy Reed’s simple love for drawing and coloring has evolved beyond just the joy it brings her; it has impacted an entire local community through Batten disease awareness thanks to her winning T-shirt design. ![]()
![]()
Full story: ow.ly/2quI50RrlFN
✅ $15,000![]()
![]()
We’ve raised 20% of our goal! Let’s keep the momentum going! Encourage your friends, family members, colleagues, etc. to register for the virtual 5K and/or join your fundraising team. The deadline to order T-shirts is ONE WEEK AWAY!![]()
![]()
🔗 ow.ly/4YY250RsSlf
NEW: The BDSRA Board of Directors approved February’s minutes during Sunday’s quarterly meeting. View the minutes on our website by clicking the link below. ![]()
![]()
🔗 ow.ly/qT8r50RntOq
Small donations do big things! As we begin to share the details about this year's Annual Family Conference, we are reminded that even emailing costs money. Through the generosity of donors, we're able to maintain a database that allows us to quickly communicate important news and announcements to our community. ![]()
![]()
We're asking you to share this post and link. It's a quick way to remind your followers that donating just a little does a lot! Have a great Friday everyone! ![]()
![]()
🔗 ow.ly/O6Zt50RkgPm
Earn badges as you raise funds for our International Batten Disease Awareness Day fundraiser! Proceeds you raise towards our $75,000 goal will help BDSRA provide compassionate support and advocacy for all types of Batten disease.![]()
![]()
Order T-shirts by May 7: ow.ly/5uiv50RmjCm
