About Us
BDSRA is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action. Founded in 1987, by parents seeking to build a network for those diagnosed with Batten disease, BDSRA is now the largest support and research organization dedicated to Batten disease in North America. BDSRA believes that to effectively unravel the mysteries of Batten disease, the worlds of medical science, research, and families must work together toward a common goal: discover treatments and cures while assuring a better quality of life for those living with the disease.
Recent News
Happy Holidays From BDSRA!
Happy Holidays from BDSRA! ❄️ Please check out our office hours for the holiday season below. We hope you all have a joyful season with your loved ones! 💙 Your Gift to BDSRA Can Be a Game-Changer A family’s journey through Batten disease is uncharted from diagnosis to bereavement. The BDSRA Foundation helps families navigate it through supplies and resources made possible by donations. Your gift to BDSRA can be a game-changer for a family today. [...]
Your Donation Makes a Difference – Help Bring Support to Batten Disease Families!
CLICK HERE TO DONATE TO BDSRA Caring for a Batten disease patient is demanding in every possible way – physically, mentally, and emotionally. The BDSRA Foundation provides Batten families with critical support. Your gifts make that possible. Make a difference for Batten families in need today. Invest in our Mission
