Agenda

The agenda is subject to change.

All times are listed in Central Daylight Time (CDT).

Pre-registration is required.

THURSDAY, JULY 10, 2025

9:00am – 5:00pm Board Meeting
4:00pm – 7:00pm Registration Open
6:00pm – 7:00pm New Family Orientation (First Time Attendees)
6:00pm – 7:00pm Grandparents & Extended Family Gathering
6:00pm – 7:00pm Reception (Donors)
6:30pm – 9:00pm *SIBS – Swimming/Games
7:00pm – 9:00pm Welcome Reception – Family Reunion
9:00pm – 11:30pm Poker Night
9:00pm – 11:00pm *SIBS (21+) – Offsite

FRIDAY, JULY 11, 2025

6:30am – 7:15am Yoga
7:30am – 5:00pm Registration
7:30am – 8:00am Prayer
7:30am – 5:00pm Farmers/Sowers’ Day Camp Available
7:30am – 8:15am Breakfast Available
8:15am – 8:30am Welcome & Housekeeping
8:30am-11:30am *The Science 
8:30am – 10:30am *SIBS General Session: Fun and Games!
8:30am – 10:45am BREAK
11:45am – 12:45pm *LGO Grief Session
11:45pm – 1:00pm

Breakout Sessions:

  • Case Management 101
  • TBD
  • TBD
12:30pm – 2:00pm Lunch Available
2:00pm – 3:15pm *SIBS Breakouts: Research
2:00pm – 3:30pm *Pet Therapy
3:15pm – 3:30 pm BREAK
3:30pm – 4:45pm CLN Support Groups: Moms/Dads/Grandparents
4:45pm – 5:15pm *SIBS Group Picture
5:30pm – 9:00pm *SIBS – Prehistoric Putt Indoor Miniature Golf
8:00pm – 11:00pm Trivia Night

 

SATURDAY, JULY 12, 2025

6:00am – 7:15am Yoga
7:30am – 4:00pm Registration Open
7:30am – 8:00am Prayer
7:30am – 5:00pm Camp Available
7:30am – 8:30am Breakfast Available
8:30am – 10:00am Welcome & Housekeeping
General Session: Ask A-Doc
8:30am – 10:00am *SIBs Breakouts
8:45am – 12:45pm *LGO Sip & Create Activity ($10)
10:00am – 10:15am BREAK – Parents see kids off to SIBs outing
10:15am – 2:45pm *SIBs – Urban Air Trampoline & Adventure Park
10:15am – 11:30am Financial Planning
10:15am – 11:30am Behavior, Cognition & Learning
10:15am – 11:30am Everyday Foundation (Advocacy)
11:30am – 11:45am BREAK
11:45am – 12:45pm CLN Support Groups: Moms/Dads/Grandparents
12:00pm – 4:30pm Centers of Excellence
12:45pm – 1:45pm Lunch Available
1:45pm – 3:00pm Managing Caregiver Stress/Burnout
1:45pm – 3:00pm Ask-Me-Anything!
2:00pm – 3:30pm

Music Therapy: An Engaging Experience (in Explorers’ Camp Room)

  • This experience will allow participants to actively engage in music therapy experiences to increase emotional support and quality of life. No previous musical skills are needed to participate.
3:00pm – 4:30pm *SIBs Breakouts
3:00pm Grandparents and Family Support Programming Brainstorming
3:00pm – 3:15pm BREAK
3:15pm – 4:30pm

Breakout Sessions:

  • Ask-A-SIB
  • Anticipatory Grief
5:15pm – 6:00pm *Kids Assemble for Parade Preparation

 

SUNDAY, JULY 13, 2025

8:00am – 10:00am Breakfast Available
9:00am – 10:30am Celebration of Life

Questions?
Contact Registration Support
P: 866-792-5399
(Monday – Friday 8:00 a.m. – 5:00 p.m. Eastern US Time)
BDSRA@sswmeetings.com