Research Studies Are Back!

We are pleased to share that our Batten Researchers are back with us at the Conference this year. There are study opportunities for everyone in a Batten-affected family to contribute to ongoing research. Your medical history, experience and insight is invaluable, and you will help advance knowledge in the field of Batten disease.

Participation is voluntary, and your responses will be kept confidential. To learn more, please click on the links below.

Thank you for considering this opportunity to contribute to important research!