Leland Dakota Sammons Roberts

Juvenile — CLN3
Birth Date: 8/23/2006
Location: Huntsville, Ontario, Canada

How old are your family members diagnosed with Batten Disease?

12

When were they first diagnosed?

2014

What are the three biggest challenges you face each week?

His sight, changing topics quickly, sleeping

What advice would you give to a family with a newly-diagnosed family member?

Enjoy every moment, take lots of pic and videos, make memories

Do you have a favorite quote or memory of your child that you’d like to share?

“Never give up” and “This is what Leland says”