On February 11, 2008, at the age of six, Nicholas Wellner was diagnosed with Infantile Neuronal Ceroid Lipofuscinosis or easier said, Batten Disease. Batten Disease is an inherited, degenerative neurological disease that mostly affects young children. At this time there is no cure or treatment and the disease is always fatal.
Nicholas has always been our most energetic child! We always loved to watch him play football with his brother in our back yard. With his energy and strength we thought we had the next NFL star. Unfortunately, that has all changed.
