My name is Catherine Horowitz and I live in South Florida with my loving husband and our two beautiful boys, Nicholas and Alex. I have Batten disease, a Neuronal Ceroid Lipofucsinosis (NCL) disorder. I, like my father, have the late-onset form of this illness; Kufs disease.
Batten disease is a progressive, always fatal, neurodegenerative disease in which there is no cure. There is dire need for funding to help find a cure and raise awareness to this devastating illness.
