Hosted by Batten parent Heather Dainiak, these chats are a safe space for parents and caregivers of all CLN types in the United States, Canada, and abroad—no pressure, no obligation—just understanding, connection, and a chance to breathe.
Session Details for Feb. 13: This is a low-pressure space to connect, reflect on the start of a new year, and talk about what care looks like right now, for ourselves and our families. Come to share, listen, or simply be present. There’s no expectation to speak. So join us for a relaxed, supportive virtual coffee session for parents in the Batten disease community—both those caring for a child and those whose child has passed. You are welcome exactly as you are.
NOTE: You only have to complete the registration form once, and you will receive the Zoom link for all future Coffee Chats. The Zoom link will remain the same for all chats. You will also receive email reminders for each upcoming Coffee Chat.
Click here to register.
