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What Is Batten Disease?
What Is Batten Disease
Types of Batten Disease
Symptoms and Diagnosis
Ways to Give
Support
Centers of Excellence
Annual Conference
2024 BDSRA Annual Conference
Watch Presentations
PHOTO GALLERY
2023 Conference Photo Gallery
2022 Conference Photo Gallery
Newly Diagnosed?
Meet Batten Families | Fam Funds
Family Grants
Family and Caregiver Support
Parenting and Finding Emotional Support
Parents and Family Members as Caregivers
Bereaved Parents and Caregivers
Nuts and Bolts of Care
Educational Resources
Support for Batten Siblings
Join the BDSRA Community
Resource Corner
Research
Global Research Initiative
Centers of Excellence
Clinical Trials & Natural History Studies Chart
Family Register
Research and Clinical News
Research and Treatments
Current RFPs
Research Awards 2019
Advocacy
Advocacy Toolkit
Rare Disease Week
State and Local Initiatives
Hometown Efforts
News
Illuminator Newsletter
Press and Media
Social Media
Events
Memorials
About
History and Mission
Our Staff
Our Board of Directors
Investors
Financials and Reporting
International Partners
Contact
What Is Batten Disease?
What Is Batten Disease
Types of Batten Disease
Symptoms and Diagnosis
Ways to Give
Support
Centers of Excellence
Annual Conference
2024 BDSRA Annual Conference
Watch Presentations
PHOTO GALLERY
2023 Conference Photo Gallery
2022 Conference Photo Gallery
Newly Diagnosed?
Meet Batten Families | Fam Funds
Family Grants
Family and Caregiver Support
Parenting and Finding Emotional Support
Parents and Family Members as Caregivers
Bereaved Parents and Caregivers
Nuts and Bolts of Care
Educational Resources
Support for Batten Siblings
Join the BDSRA Community
Resource Corner
Research
Global Research Initiative
Centers of Excellence
Clinical Trials & Natural History Studies Chart
Family Register
Research and Clinical News
Research and Treatments
Current RFPs
Research Awards 2019
Advocacy
Advocacy Toolkit
Rare Disease Week
State and Local Initiatives
Hometown Efforts
News
Illuminator Newsletter
Press and Media
Social Media
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Memorials
About
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Our Staff
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