2022-02-22 Rare Disease Week on Capitol Hill Rare Disease Week on Capitol Hill February 22, 2022 - March 2, 2022 Rare Disease Week on Capitol Hill Rare Disease Week on Capitol Hill brings together rare disease […]
7:00 pm - 8:00 pm Rare Disease Week Debrief Party March 2, 2022 @ 7:00 pm - 8:00 pm Rare Disease Week Debrief Party After a week of advocating for our Batten Community, join [...]
5:30 pm - 6:30 pm Stay Golden: St. Patrick’s Day Party March 10, 2022 @ 5:30 pm - 6:30 pm Stay Golden: St. Patrick’s Day Party Registration is now open for BDSRA's Stay Golden Saint Patrick's [...]
7:00 pm - 8:00 pm Newly Diagnosed Meet and Greet March 22, 2022 @ 7:00 pm - 8:00 pm Newly Diagnosed Meet and Greet A place for new families to meet one another, learn [...]
5:00 pm - 6:00 pm Ask-An-Expert Rare & Ready: Clearing Hurdles to Access Rare Disease Therapies March 29, 2022 @ 5:00 pm - 6:00 pm Ask-An-Expert Rare & Ready: Clearing Hurdles to Access Rare Disease Therapies Join us to learn more about the Rare & Ready [...]
March 29, 2022 @ 5:00 pm - 6:00 pm Ask-An-Expert Rare & Ready: Clearing Hurdles to Access Rare Disease Therapies