8:00 pm - 9:00 pm Moderator Support Training June 5, 2024 @ 8:00 pm - 9:00 pm Moderator Support Training On Wednesday, June 5 at 8 p.m. EDT, Dr. Joseph Vigil [...]
2024-06-09 International Batten Disease Awareness Day International Batten Disease Awareness Day June 9, 2024 International Batten Disease Awareness Day About this event: Join us as we celebrate Batten families […]
6:30 pm - 7:30 pm First-Time Conference Attendee Orientation June 18, 2024 @ 6:30 pm - 7:30 pm First-Time Conference Attendee Orientation BDSRA will hold a First-Time Conference Attendee Orientation on Tuesday, June [...]
6:30 pm - 7:30 pm SIBs Warm-Up June 19, 2024 @ 6:30 pm - 7:30 pm SIBs Warm-Up Before you reunite with your fellow SIBs in person at [...]