12:30 pm - 1:30 pm Fam Funds Informational Zoom Meeting January 28 @ 12:30 pm - 1:30 pm Fam Funds Informational Zoom Meeting FAM FUNDS IS BACK! Batten families now have the opportunity […]
6:30 pm - 7:30 pm Valentine’s Day Party February 11 @ 6:30 pm - 7:30 pm Valentine’s Day Party Love is in the air, and so is fun! The [...]
7:00 pm - 8:00 pm Grief Chat February 16 @ 7:00 pm - 8:00 pm Grief Chat BDSRA, as part of its Life Goes On program for [...]
2025-02-24 Rare Disease Week on Capitol Hill & FDA-NIH Rare Disease Day Rare Disease Week on Capitol Hill & FDA-NIH Rare Disease Day February 24 - February 28 Rare Disease Week on Capitol Hill & FDA-NIH Rare Disease Day Click here to apply for a $1,000 travel stipend from […]