Peter Edwards

Finnish Late Infantile – CLN5
Date of Birth: 08/30/2003
Deceased Date: 02/23/2012
Location: New Market, MD, U.S.

How old are your family members diagnosed with Batten Disease?

When were they first diagnosed?

What are the three biggest challenges you face each week?

What advice would you give to a family with a newly-diagnosed family member?

Do you have a favorite quote or memory of your child that you’d like to share?