ABOUT US
BDSRA is dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action. Founded in 1987, by parents seeking to build a network for those diagnosed with Batten disease, BDSRA is now the largest support and research organization dedicated to Batten disease in North America. BDSRA believes that to effectively unravel the mysteries of Batten disease, the worlds of medical science, research, and families must work together toward a common goal: discover treatments and cures while assuring a better quality of life for those living with the disease.
RECENT NEWS
The winner of the Batten Disease Awareness Day T-Shirt Design Contest is…
🚨 THE VOTES ARE IN! 🚨 Here is the winning design, submitted anonymously, that will grace this year’s International Batten Disease Awareness Day T-shirts! THANK YOU to each of the 20 participants who submitted a design this year and the 260 who cast a vote. Stay tuned for more information on when T-shirts will be available for purchase as well as news and events leading up to Batten Awareness Day on June 9! Donate Today and [...]
BDSRA Annual Family Conference Registration is Open!
Annual Family Conference registration is open! Plus, we have our theme! 🌽🧬 You can also reserve your hotel room(s) and apply for a conference grant. Come sow hope for a cure with us in Lincoln, Nebraska this July! REGISTER TODAY
