No one battles Batten disease alone, and now, you’ll find helpful information below on how to raise awareness and funds within your community! The toolkit includes a letter you may use electronically or print, and a social media graphic for you to post with sample messages.

Click here to visit the 2025 International Batten Disease Awareness Day home page.

Letter (Print or Send via Email)

Click the letter above to access it, or click/copy this link: https://ow.ly/n9ON50VRoPU

Social Media Graphic

You may use the image above to post on your social media accounts or share with others via text and email. If you’re on your smartphone, please click the image and then hold it down to save it to your smartphone. If you’re on a desktop, click the image and it will appear in a new window. Then right-click the image and save it to your computer.

Sample Message w/Graphic

Please copy any of the messages below to use with the social media graphic above.
If you can, please include the hashtags #BattenDay2025 and/or #BattenAdvocatesForACure.

I know and love someone with Batten disease. The Batten community is stronger when we all come together and advocate. My community needs you. Give to the BDSRA Foundation today to make a difference for families battling this devastating disease: https://ow.ly/ak3850VMcpa  

Batten disease has no cure. When you join our fight, you help us take a step toward a world without Batten. Give to the BDSRA Foundation today so the organization can continue to fund research grants, provide clinical updates, and convene Clinical Centers of Excellence: https://ow.ly/ak3850VMcpa

Families battling Batten disease are in crucial need of support resources. When you join our battle and give to BDSRA, you’re helping families’ access to grant programs, virtual programming, the Annual Family Conference, and more: https://ow.ly/ak3850VMcpa