Media Contacts

If you are a journalist or member of the media and would like more information or to arrange an interview, please contact:

info@bdsrafoundation.org
Toll-free: 1-800-448-4570
PO Box 30049, Gahanna, OH, 43230

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Media – Raising Awareness About Batten Disease

Our media compliance and standards package will be coming soon- and will include competencies such as:

  • Public Service Announcements (PSA’s)
  • Guidelines for Reporting and Writing about People with Disabilities
  • Press Releases and Statements
  • Fast Facts about Batten Disease

Learn about our families affected by Batten disease. If you have any direct media questions, please reach out to us at (800)448-4570 or info@bdsrafoundation.org.